It has been a long time since my last update but I wasn’t planning on writing again until your 1st birthday.
So much has happened in what feels like such a short space of time. You’re babbling away and quite happily saying “da da” and “yeah yeah”. You can even crawl! Every doctor and consultant is so happy with your progress. You have still been attending your eye, lung disease, neuro and phototherapy clinics and passing them all with flying colours. I’ll never ever be able to express in words how thankful I am for you to have no problems – I’m genuinely blessed.
I felt the need to update today as last night we took you to the hospital as you had been very wheezy. This wouldn’t be an issue for a full term child really but because of your lung disease we were advised to take you straight up. After being examined in hospital, we were told you have croup. You were given steroids to try reduce the swelling in your throat but to be honest I don’t think it has helped at all. Anyway. I was told that you were not allowed to come home and had to stay overnight.
Mummy was allowed to stay with you but I knew it was going to be a horrible night as we were put in a ward with 3 other sick babies who were up all night screaming and crying. You would normally sleep from 7pm – 7am so you were totally thrown out of your routine.
Being back in that hospital overnight was the worst feeling. My heart was just in my stomach the whole time and my head was filled wirh all the horrible memories. It never goes away. I ended up having a wee cry, couldn’t help it. Just came out. The last thing we ever want – that any parent wants – is to see you in pain.
You’re back home now but I’ve to watch you carefully and call an ambulance if I see you starting to struggle. Touch wood it doesn’t come to that, you’re a tough wee cookie.
well we FINALLY got your sleep study results back yesterday. A whole week later.
YOU PASSED. woohoo.
Instead of taking you off oxygen for 12 hours a day, they have taken you off the oxygen all together! You are currently having a sleep study as we speak. All tucked up in bed so fingers crossed you pass.
We took you away from Sunday – Wednesday. Nice wee break up north of Scotland.
well you have another sleep study tomorrow night baby girl. They are letting us do it at night time again so I have my fingers crossed that you have a settled night and don’t kick about too much!
I will so freaking happy if you pass. You have been doing Great off the oxygen and the weather has been great. Just makes me sad when I have to put the oxygen back on you at night time and you get so upset.
jeez olive, it’s been 6 months since you were born and I cannot believe it! It started off rocky and full of negative emotions but I can honestly say with my hand on my heart that I love being a mother. I love being a mother to you. No one has ever made me as happy as you do. Happy 6 months baba!
Also, you have your sleep study tonight…. Fingers crossed.
well little poppet, you got discharged from the baby eye clinic a couple of days ago woohoo. Every milestone and all that. The Dr said he was really worried about you when you were born that your blood vessels wouldn’t form properly etc but he’s really pleased with you! You move into the big kids eye clinic now just to check your vision etc moving forward.
Had your physio appointment also but they said its way too early to tell anything about your development so you will need to attend the physio for quite a while I think. It’s amazing that the NHS are able to provide this level of after care. I’m so thankful for everything.
Will find out tomorrow when your next sleep study is. One night this week I hope as the tubes are annoying you so much. Woke up this morning and you had ripped them off your face! God knows how long you didn’t have them on for haha